New Plan
I guess both of my posts uploaded yesterday so you got the short and long versions.
Here is the latest news. Dr Gandhi came in last night and said we have 3 options: 1) go home on oxygen and do nothing until the Glenn surgery 2) do the surgery now 3) do another cath and put a stint in the shunt because it has a little narrowing also. He said if it was his child he would do option #3. He said with his heart function being so poor right now he thinks Damon would have a hard recovery and be here longer than necessary if we went forward w/ the surgery now and doing another cath would probably buy us the time we need to get his heart working better before the Glenn.
We decided that we would go that route so Damon is having another heart cath this afternoon/evening. In the one they did last Friday they went into his aorta and ballooned it open where it had narrowed allowing the blood flow to the body to be better. This time they are going to go into the shunt and put in a stint to open it up which will allow more blood to go into his lungs to get oxygen, which should make his sats go up and make his overall heart function better.
He is on three new meds since we've been here, all to help his heart function, but the docs are saying that sometimes they can take a few weeks to start working. God willing, after this second cath and with all these new meds his heart will be doing a lot better very soon. There is still a possibility that he will have to come home on oxygen, but that ok.
Please pray that he will not get any blood clots in his artery and that the cath goes ok. Pray for Jeremy while he travels up here today.
We don't know when we will be coming home. We really want to soon, but we need to make sure it's ok for our little fighter. He is so sweet, he still smiles at us and talks. He likes his nurses and yesterday when Dr Gandhi was in there he was on my lap and he was looking at Dr Gandhi like he was listening really intently to what he was saying. He has lots of little battle scars right now from all the pokes he's gotten and from where tape has been taken off but he's hanging in there.
I talked to a lady this morning who's daughter had a bone marrow transplant. They have been here since January 4th.
God please place your healing hands on every child in this hospital. They are all precious in your eyes and need your presence with them all the time. Give them courage when they are scared and hope where there seems to be none. Strengthen their parents to be able to keep smiling when all they want to do is cry. Amen
Sarah
Here is the latest news. Dr Gandhi came in last night and said we have 3 options: 1) go home on oxygen and do nothing until the Glenn surgery 2) do the surgery now 3) do another cath and put a stint in the shunt because it has a little narrowing also. He said if it was his child he would do option #3. He said with his heart function being so poor right now he thinks Damon would have a hard recovery and be here longer than necessary if we went forward w/ the surgery now and doing another cath would probably buy us the time we need to get his heart working better before the Glenn.
We decided that we would go that route so Damon is having another heart cath this afternoon/evening. In the one they did last Friday they went into his aorta and ballooned it open where it had narrowed allowing the blood flow to the body to be better. This time they are going to go into the shunt and put in a stint to open it up which will allow more blood to go into his lungs to get oxygen, which should make his sats go up and make his overall heart function better.
He is on three new meds since we've been here, all to help his heart function, but the docs are saying that sometimes they can take a few weeks to start working. God willing, after this second cath and with all these new meds his heart will be doing a lot better very soon. There is still a possibility that he will have to come home on oxygen, but that ok.
Please pray that he will not get any blood clots in his artery and that the cath goes ok. Pray for Jeremy while he travels up here today.
We don't know when we will be coming home. We really want to soon, but we need to make sure it's ok for our little fighter. He is so sweet, he still smiles at us and talks. He likes his nurses and yesterday when Dr Gandhi was in there he was on my lap and he was looking at Dr Gandhi like he was listening really intently to what he was saying. He has lots of little battle scars right now from all the pokes he's gotten and from where tape has been taken off but he's hanging in there.
I talked to a lady this morning who's daughter had a bone marrow transplant. They have been here since January 4th.
God please place your healing hands on every child in this hospital. They are all precious in your eyes and need your presence with them all the time. Give them courage when they are scared and hope where there seems to be none. Strengthen their parents to be able to keep smiling when all they want to do is cry. Amen
Sarah
1 Comments:
It sounds like you guys are in great hands, not only "heavenly" but "earthly" too. I know you are tired, and concerned and totally stressed out. That is perfectly ok and justified. Just don't let up your guard, and we won't either. We are praying without ceasing down here in Texas. You know that we are committed in this journey with you - we are just a bit up the road. There are a few bumps, but I have faith that you will be fine.
Heart full of Love from Texas!
Teloa
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