Update
Well we are in STL again. This is not at all how I pictured our next trip up here. But as we have learned very well in the past six months or so, what we want, or think will happen doesn't always happen. The will of God is bigger than we can imagine.
The short version of why we are here is that when the nurse came yesterday Damon was having trouble breathing and she said he was retracting a little bit. We were planning on going to Dr Grote's this morning but around 1:30pm yesterday when I was feeding him he was breathing so fast and his face was really blue looking so we ended up taking Damon in yesterday instead. Dr Grote checked him out in the office and then called Dr Tong and they both thought it would be best to get a chest xray. Dr Grote said he was concerned about his respiratory rate and his color so Dr Tong said if the xray didn't show anything then we needed to get to STL in case it was something surgical.
We had to wait for the medflight in the ER at Freeman. It was a long wait. The team from STL came in a small jet and landed at the airport and came to Freeman in an ambulance. They came and got us and we rode back to the airport then got on the plane and were in STL in about an hour. I was allowed to ride on the plane with Damon, for which I am so grateful. I couldn't bare the thought of him getting there and looking for me and wondering where Mommy is. Jeremy and my mom drove up after the plane took off and Jeremy's parents Barbara and Greg drove up as well.
They did an Echo on him last night and said they didn't have any concrete reason yet for what was wrong so they just let him go to bed and monitored his sats. This morning he had another Echo and another chest xray. One of the cardiologists came and told us that his aorta has narrowed and that was causing the problems. They decided to go ahead and do the heart catheterization now since we were already here and while they were in there they would do a balloon to open up his aorta.
That's where he is right now, and we won't get an update until 2pm. He will have to stay overnight but most likely we will be able to come home sometime tomorrow. Thank you for all your prayers, but keep them up because he still needs them and He is still in control.
We will let you know as soon as we have more news. Talk to you later.
Sarah
The short version of why we are here is that when the nurse came yesterday Damon was having trouble breathing and she said he was retracting a little bit. We were planning on going to Dr Grote's this morning but around 1:30pm yesterday when I was feeding him he was breathing so fast and his face was really blue looking so we ended up taking Damon in yesterday instead. Dr Grote checked him out in the office and then called Dr Tong and they both thought it would be best to get a chest xray. Dr Grote said he was concerned about his respiratory rate and his color so Dr Tong said if the xray didn't show anything then we needed to get to STL in case it was something surgical.
We had to wait for the medflight in the ER at Freeman. It was a long wait. The team from STL came in a small jet and landed at the airport and came to Freeman in an ambulance. They came and got us and we rode back to the airport then got on the plane and were in STL in about an hour. I was allowed to ride on the plane with Damon, for which I am so grateful. I couldn't bare the thought of him getting there and looking for me and wondering where Mommy is. Jeremy and my mom drove up after the plane took off and Jeremy's parents Barbara and Greg drove up as well.
They did an Echo on him last night and said they didn't have any concrete reason yet for what was wrong so they just let him go to bed and monitored his sats. This morning he had another Echo and another chest xray. One of the cardiologists came and told us that his aorta has narrowed and that was causing the problems. They decided to go ahead and do the heart catheterization now since we were already here and while they were in there they would do a balloon to open up his aorta.
That's where he is right now, and we won't get an update until 2pm. He will have to stay overnight but most likely we will be able to come home sometime tomorrow. Thank you for all your prayers, but keep them up because he still needs them and He is still in control.
We will let you know as soon as we have more news. Talk to you later.
Sarah
5 Comments:
Sarah and Family,
I'm praying for you all and I'll be thinking of you. Sarah, I'm so glad that you were able to be with Damon in the plane on the way to STL. I know that God is watching over Damon because he has done so many miracles already for your little boy. I was so happy to see you the other day at the bank, he is beautiful! Love you!
Amy
Thank you for the update. We are praying for Damon and for you all as well. We love you all bunches and we will do anything you need us to do!
Lacey
Thanks for the update. We're praying for you all. We love you very much!
Dre, Beth & A.J.
This is a very familiar story to me! We had this happen with baby Cade also. Trust me, you are going to know it all before long! We will say extra prayers for you all tonight and will be checking for messages often. Hang in there Sarah... YOU are the anointed one for such a time as this!
Teloa
Sarah and family,
I will be keeping you all in my prayers. It was so good to see you and Myles the other weekend, I miss you all so much! Good luck with everything in STL, Damon is such a blessing and a hero, he has been through so much already in his short time here! Let me know if you need anything, love ya all! :)
Caroline
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