If it's not one thing...

it's always another. Damon hasn't thrown up since Sunday. The drops that settle his stomach are working so I'm going to keep giving them to him for several more days so he can completely get over whatever it was.

He finally was able to "go" yesterday after two suppositories. (Actually it was three because I gave him one Sunday night w/ no results.) But now he has been going a lot and has a very red bottom. Argggg, hopefully I can figure out the right combination of juice and benefiber to get things moving like they need to be, if you know what I mean. Talk to you all later.

Sarah

Damon

Damon was sick all last week,throwing up at least once everyday. We took him to the dr and they prescribed him some drops to settle his stomach down. They seem to help but I didn't give them to him as many times as I should have yesterday and he threw up last night a whole bunch. He is also really constipated. He's been trying to go poo since yesterday morning. I've given him two suppositories and still nothing. I called Dr Grote today and his receptionist told me Dr Grote suggested that I still give him the drops for his stomach as long as it's helping. She also said to get him some prune juice (I found some plum juice that tastes better and isn't so thick) and to give him some fiber supplements everyday. I got him some Benefiber, which is a powder that disolves in water. It's tasteless, and colorless so hopefully he will take it w/ out knowing and it can get him straightened out. Please pray for him, he's really so uncomfortable and just cranky.

Sarah

Update

Damon was doing better last night and this morning, he was able to keep some food down, but then at lunch he threw up again so I took him to the dr this afternoon. He was written two scripts, one to calm his stomach and the other an antibiotic b/c his throat was really red. When I got to the pharmacy to pick them up they told me that the one to calm his stomach wouldn't be in until tomorrow so I don't know if he will be able to keep anything down until he gets that or not. I'm really frustrated about it because I want him to be able to eat.

I just read through the latest posts from baby Molly Benson's family. She was buried on Monday and her memorial service is going to be May 4th. This family is handling this with so much grace. Please still pray for them. And pray for Damon too.

Sarah

Sick boy

Well Damon has gotten another virus or bug or whatever. He wasn't feeling well yesterday and last night he threw up in the carseat which was soooo fun to clean up. He has thrown up today after breakfast and lunch so he is restricted to eating only cherios and crackers for now. Raise your hand if you think he is minding this diet at all. He also has a little bit of a fever. Please say some prayers for him to get better. I hate it when he's sick. I'm kicking myself for taking him out so much and exposing him to germs but I can't do anything about it now. Talk to you all later.

Sarah

In the arms of Jesus

Little Molly was born yesterday around 12:50pm. She went to heaven at 1:15pm. I'm so grateful for this family that she was born alive and that they were able to spend that precious time together, however short it was. Please keep Bob, Kathy and their son Sean in your prayers in the coming days and weeks. Often in my life when I cannot find words to say, a song will say them better than I ever could. Here are words to a song by my favorite band.

"Glory Baby"
Glory baby, you slipped away as fast as we could say baby,
You were growing, what happened dear, you dissappeared on us baby
Heaven will hold you before we do, heaven will keep you safe until we're home with you

But we miss you everyday, miss you in everyway
But we know there's a day when we will hold you, we will hold you
And you'll kiss our tears away, when we're home to stay
We can't wait for the day when we will see you, we will see you
So baby let sweet Jesus hold you till mom and dad can hold you
You'll just have heaven before we do

Sweet little babies, it's hard to understand it cause we're hurting, we are hurting
But there is healing, and we know we're stronger people through the growing
And in knowing that all things work together, for all good
And God works His purposes just like He said He would, just like He said He would

I can't imagine heaven's lullabys and what they must sound like
But I will rest in knowing, heaven is your home and it's all you'll ever know

Talk to you all later
Sarah

Benson Family

I've mentioned baby Molly on here before. When her mom was in her early 2nd trimester she found out that Molly has two heart defects and despite treatment, her little heart started failing a few weeks ago. Medically there was nothing the drs could do for her so her family decided to stop treatment (the meds has negative affects on her mom) and allow her life to last as long as God has planned. Little Molly has survived these few weeks in her mommy's tummy and tomorrow she will be born into the world. The drs have already told her mom and dad that there's nothing really they can do for Molly so her mom and dad are taking a compassionate care approach and they are going to just spend as much time with her after she is born as they can. I don't really know how long Molly will survive after she is born, but I'm grateful to God for this family that they will have at least a few moments so they can tell her how much they love her and she can feel their arms around her.

My heart is breaking over this. I just can't even imagine how hard this whole ordeal has been for this family. I can't understand it and every time I think about them going to the hospital tomorrow to deliver their baby, the whole time knowing that they won't be able to bring her home....I just can't even describe the sorrow I feel for them. This whole evening, every time I looked at Damon I just thanked God so much for him being here. Maybe some of you out there wonder if we had known what all we would have to face with him, would we still have even gotten pregnant. The answer is yes, a hundred times over. As horrible as some of it has been, he is so worth it and he's here with us. And this family doesn't even get the chance. My words aren't coming out like I want them to so I'm going to stop typing. Thank you God for your Holy Spirit who interprets our prayers even when we can't find the words to say. Please pray for Bob, Kathy, Sean, and baby Molly tomorrow.

Sarah

HLHS slideshow made by Stephanie Husted

This is a slide show of HLHS warriors and angels made by a fellow heart mom, Stephanie Husted. She was nice enough to include Damon in the pictures. To view it just click the link below. Enjoy and talk to you all later.

Sarah


http://www.onetruemedia.com/shared?p=58179ab57294e3e32a91af&skin_id=601&utm_source=otm&utm_medium=text_url

Dr Appt

Damon had an appointment with Dr Tong yesterday in Springfield. Everything went well and Dr Tong said his heart is the same as last time he was there (two months ago). We talked a lot about Damon's future, what kind of physical limitations he may have, what kind of life he'll have as an adult. Dr Tong wasn't able to really give me very much concrete information because there is so much that is unknown and each child is special with their own circumstances.

I think of everything that we deal with, the uncertainty of the future is the most frustrating. We will continue to trust God for Damon and believe that He will take care of him, but it's so hard to do sometimes. We just have to take one day at a time. I've kind of adopted this as my motto: There is no promise in what tomorrow holds, only in who holds tomorrow. I believe that with all my heart. God is holding our tomorrow and whatever we face, He is in control.

The little boy I mentioned on my last post, Gage, had his surgery and it went very well. He is recovering so please continue to pray for him. I have also mentioned baby Molly before. She is a little one who is still in her mommy's belly. She has two heart defects I think and they are very serious. Her mom was taking meds to try to make her live until she could be born but they stopped working and her heart is failing. As of last night, the signs of her heart failure showed that she will probably be going up to heaven any day now. Her mom's drs are going to try to deliver Molly soon so that possibly she can be born alive and get to spend some time in her parents loving arms before she goes to heaven. They have updated their website since last night so there might be more news but I haven't read it yet. Please pray for peace and comfort for this family. They need it so much right now.

Take care and I'll talk to you all later.
Sarah

Pray for Gage

I've mentioned Gage before, he is a little boy who has cancer (brain tumor). Tomorrow he is having a surgery that is kind of experimental. They take out the tumor and then do radiation in the space where the tumor was. His family is believing God for healing in Gage's body and I'm agreeing with them. Please say a prayer for the whole family. It's going to be a long day for them. He goes in at 7:30am and the surgery is supposed to last up to 7 hours. So no matter what time you read this tomorrow (Tuesday) Gage will need your prayers.

Talk to you all later.

Sarah

Enjoying the sunshine!

It's such a beautiful day! The sun is shining and it's warm but not hot, it's perfect. We went to the park to play after church. Damon really loves being outside. He is getting better all the time at walking, but today it was funny to watch him because he was walking on the grass and that wood chip stuff they put around the playground and it is uneven. He would take a couple of steps and then lose his balance and put his hands down to catch himself. So most of the time we were there he had his feet and hands on the ground, with his little bottom in the air.

He's also getting more and more independant. He wants to do things himself and wants to try to use things that he really shouldn't be using, like a butter knife. He sure does get so angry when he doesn't get his way. He's trying out all sorts of new words too. His latest is bubble, which makes him do the cutest thing with his mouth.

We hope you all take time to enjoy spring while it's here, it always seems so short. Talk to you all later.

Sarah